Medical Technologies

Notes and data points for prices of orphan products

February 22, 2010., Matthew Herper, "The World's Most Expensive Drugs," Forbes.

Genzyme's web page on the cost of treatment.

Some data points on Fabrazyme prices.

2004 prices for Replagal

US NGO’s Call For George Washington University to Cease Industry-Sponsored Intellectual Property Training in India

On June 7, 2010 medicine access advocacy groups joined together in asking that George Washington University (GWU) put a stop to its industry-sponsored intellectual property (IP) summits and to take an academic, evidenced-based approach to conferences it conducts in India.

Indian NGOs confront GWU Law School efforts to push maximalist IPR norms in India

The ties between Universities and businesses are often complex and blurred. Private companies or trade associations fund research and seminars, and have consulting relationships with faculty members, trying to shape public policy and judicial decisions on a wide range of issues. A particularly interesting industry/university connection concerns something called the "India Project," that is associated with the George Washington University (GWU) Law School.

March 28, 2001 Letter to US Secretary of Health and Human Services Tommy Thompson regarding access to NIH funded patents

March 28, 2001

Secretary Tommy Thompson
Department of Health and Human Services
200 Independence Avenue, SW
Washington, DC 20201

Dear Mr. Thompson:

September 1999 Letter to NIH, urging it provide the World Health Organization with access to U.S. government-funded medical inventions

Ralph Nader
P.O. Box 19312, Washington, DC 20036

James Love
Consumer Project on Technology
P.O. Box 19367, Washington, DC 20036

Robert Weissman
Essential Action
P.O. Box 19405, Washington, DC 20036

September 3, 1999

Dr. Harold E. Varmus
Building 1, 126
National Institutes of Health
Bethesda, Maryland 20892

Congressional Hearings in 110th U.S. Congress, on pharmaceutical drugs (including trade issues)

U.S. Senate

Appropriations Committee

Subcommittee on Labor, Health and Human Services, and Education 

April 18, 2007 Hearing on Global Health


Judiciary Committee

June 6, 2007 Patent Reform: The Future of American Innovation


Committee on Health, Education, Labor, and Pensions

UNITAID Patent Pool for Medicines

In 2007 Medécins sans Frontières (MSF, Doctors Without Borders) and Knowledge Ecology International (KEI) presented a proposal for UNITAID to host a medicines patent pool.

In July 2008 the UNITAID Board supported the principle of establishing a patent pool for medicines to provide patients in low and middle income countries with increased access to more appropriate and lower price medicines.

Recap on the House vote on Biosimilars

The rollcall for the biosimilars vote in on the Internet here. Based upon the count released by the committee, voting for the Eshoo Amendment were 26 Democrats and 21 Republicans. Voting against were 1 republican (Deal) and 10 Democrats. One Republican did not vote. I have bolded the Nay votes.

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