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On 12 July 2013, Senator Leahy (D-VT), Chair of the Senate Judiciary Committee requested that the NIH exercise its march-in rights under the Bayh-Dole Act to promote genetic testing for BRCA mutations that are associated with a person’s risk for breast and ovarian cancer. In June, the Supreme Court of the United States unanimously ruled that isolated DNA is not patentable, and immediately afterward, other companies stated they would provide BRCA testing. Continue Reading →

Knowledge Ecology International is holding a side event in Marrakesh on 24 June 2013 at 2:00 PM in Karam 4 at the Palais des congrès entitled, “Views of observers on the hot button issues contained in the Marrakesh Treaty Text”.

Moderator:
Krista Cox (Staff attorney, KEI)

Speakers:

Maryanne Diamond (President, World Blind Union)

Carlo Scollo Lavizzari (Attorney, International Association of Scientific Technical and Medical Publishers)

Pranesh Prakash (Policy Director, Center for Internet and Society)

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In February 2013, the World Intellectual Property Organization (WIPO) reached a very difficult compromise of the broader copyright issues that were blocking progress on a treaty on copyright exceptions for blind persons. As part of that compromise, the negotiators agreed to this text:

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On Monday, 17 June 2013, the Supreme Court of the United States released its opinion in Federal Trade Comm’n v. Actavis (formerly captioned as FTC v. Watson Pharmaceuticals, Inc.). The decision, with a 5-3 split, found that pay-for-delay settlement agreements are unusual, raising concerns of anticompetitive behavior, and are not immune from antitrust scrutiny. Continue Reading →

On 13 June 2013, the long awaited opinion of the Supreme Court of the United States in the case on whether human DNA is patentable was issued and, the last line of the opinion summarizes, “We merely hold that genes and the information they encode are not patent eligible under §101 simply because they have been isolated from the surrounding genetic material.”
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On Thursday, 13 June 2013, at the Twenty-third session of the Human Rights Council in Geneva, Brazil delivered the following intervention introducing draft resolution L.10/Rev.1 on Access to medicines in the context of the right of everyone to the enjoyment of physical and mental health on behalf of India, Brazil, South Africa (IBSA), Egypt, Indonesia, Senegal and Thailand and 27 original cosponsors including Gabon, on behalf of the 54 countries of the African Group.

Mr. President,

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In their introduction to Realizing the Right to Health, Andrew Clapham and Mary Robinson provide the following anecdote.

The run up to the 2008 election in the United States focused at one point on the nature of health care in America. During the second presidential debate, the candidates were asked the following question: “Is health care in America a privilege, a right, or a responsibility?” Senator Obama (as he then was) replied as follows:

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Statement of Knowledge Ecology International in Support of the Unlocking Technology Act (H.R. 1892)
June 9, 2013

The bipartisan Unlocking Technology Act (H.R. 1892), introduced by Representative Lofgren (D-CA) and co-sponsored by Representatives DeFazio (D-OR), Eshoo (D-CA), Holt (D-NJ), Massie (R-KY), and Polis (D-CO) takes the welcome step of scaling back the overprotection of “digital locks” and promoting consumer choice and competition.

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Joint Letter to the 66th World Health Assembly: Follow-up of the report of the CEWG

20 May 2013

Distinguished Delegate,

We urge the World Health Organization (WHO) and its Member States to exercise leadership, ambition and innovative thinking in developing new paradigms to take forward the work of the Consultative Expert Working Group on Research and Development: Financing and Coordination (CEWG) in reconciling the objectives of stimulating medical innovation and ensuring access for all.

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