Rare diseases

KEI Submits FOIA Regarding FDA Orphan Products Grant Program

Posted on by Claire Cassedy

On July 28, 2025, Knowledge Ecology International (KEI) submitted a Freedom of Information Act request for records concerning the Food and Drug Administration (FDA) Orphan Products Grant Program. The program (administered by the FDA’s Office of Orphan Products Development (OOPD))… Continue Reading →

EB156: KEI statement on the rare diseases decision under agenda item 6 (Universal health coverage)

Posted on by Thiru

On Wednesday morning, 5 February 2025, Knowledge Ecology International (KEI) delivered the following statement on the rare diseases decision under agenda item 6 on Universal Health Coverage. Item 6 Universal health coverage Knowledge Ecology International A challenge for the rare… Continue Reading →