KEI has a page on Charity and NIH funding related to Zolgensma, here:
https://www.keionline.org/charity-nih-funding-related-to-zolgensma
James Love
James Love is the Director of Knowledge Ecology International. Previously, he was an economist for the Center for Study of Responsive Law where he also directed the Consumer Project on Technology and the Taxpayer Assets Project, Senior Economist for the Frank Russell Corporation, and held lecturer positions at Rutgers and Princeton Universities. His KEI webpage is https://keionline.org/jamie.