Request to Dr. Jerry Mendell to disclose costs of clinical trial for Zolgensma


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Re: Clinical trial cost request, June 2019 In June 2019, KEI reached out to Dr. Jerry Mendell in an effort to obtain information on clinical trial costs. June 19, 2019 Email from Laurel Boman at KEI to Dr. Jerry Mendell…

Charity and NIH funding related to Zolgensma


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June 14, 2019 ​​Zolgensma, the Novartis brand name for the new $2.1 million gene therapy for treatment of Spinal Muscular Atrophy (SMA), appears to be a remarkable medical breakthrough treatment. It is also, like all of the new cell- and…