Special 301

The USTR’s Special 301 Report has been issued every year beginning in 1989. The Executive Summary of the 2009 report says: The “Special 301” Report is an annual review of the global state of intellectual property rights (IPR) protection and… Continue Reading

2010 Fabrazyme March-In Request

More on Fabry here: https://keionline.org/fabry NIH rejects Fabrazyme March-In Petition December 7, 2010. Press release from Fabry patients: DHHS denies patient’s march-in request to end Genzyme’s rationing of treatment for Fabry Disease citing that FDA rules block manufactures from supplying… Continue Reading

James Love

Contacting James Love Work phone: +1.202.332.2670 | Mobile Phone +1.202.361.3040 | Email: james.love@keionline.org Twitter: @jamie_love Blue Sky: @jamielove@bsky.social Fediverse: @jameslove@hackyderm.io (Give my office a call or give me another nudge if you have difficulty getting a response. I am overwhelmed… Continue Reading

Areas of work

Below are a few links to pages that show our work in specific fields (note: this list is currently under construction and will be continually updated): Innovation and access to medical technologies Cancer Drugs Coronavirus/COVID-19 Orphan/Rare diseases A standalone page… Continue Reading

Right to Read for Persons with Reading Disabilities

The original proposal for the Marrakesh treaty, including the 2008 report of the drafters, is here. web page for Marrakesh diplomatic conference Petitions NFB petition: The Petition Supporting WIPO Treaty for the Blind and Print Disabled https://nfb.org/civicrm/petition/sign?sid=2 ACB petition: Petition… Continue Reading

KEI Board of Directors

Sakiko Fukuda-Parr, Chair Sakiko Fukuda-Parr is a Professor of International Affairs at The New School, New York. A development economist, her current work focuses on global policies for human development and human rights in diverse areas including poverty reduction, conflict… Continue Reading

Chilean Cámara de Diputados Votes Overwhelmingly To Proceed With Compulsory Licenses for HCV Drugs

The Cámara de Diputados of the Chilean Congress has overwhelmingly passed a resolution calling on the President to advance the compulsory licensing request on HCV drugs made in March 2017 by patients, advocates including Innovarte NGO, and elected officials. The resolution, Number… Continue Reading